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Partner Perspectives on Cystic Fibrosis Sexual and Reproductive Health Care.

Brittany M Woods1,2, Leigh A Bray1,2, Janet Brown1,2

  • 1The University of Alabama Capstone College of Nursing, Tuscaloosa, AL, USA.

Health Education & Behavior : the Official Publication of the Society for Public Health Education
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PubMed
Summary

Partners of women with cystic fibrosis (CF) desire inclusion in sexual and reproductive health (SRH) discussions. Improved CF care requires integrating partners and training clinicians on SRH needs.

Keywords:
cystic fibrosispartnersqualitative researchreproductive health

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Area of Science:

  • Reproductive Health
  • Cystic Fibrosis Research
  • Patient-Centered Care

Background:

  • Sexual and reproductive health (SRH) care for cystic fibrosis (CF) patients lags behind other medical priorities.
  • Partners of females with CF are crucial support but their SRH perspectives are understudied.

Purpose of the Study:

  • To explore the SRH knowledge, experiences, preferences, and concerns of partners of females with CF.
  • To identify barriers and facilitators to inclusive SRH care in CF.

Main Methods:

  • Mixed-methods study involving 20 partners of females with CF.
  • Verbatim transcription and thematic analysis of interview data.

Main Results:

  • Limited progress in CF-related SRH care identified.
  • Partners desire inclusion in decision-making and SRH discussions.
  • Paternalistic provider attitudes and lack of collaboration hinder optimal care.

Conclusions:

  • Integrating partners into SRH discussions is crucial for patient-centered CF care.
  • SRH-specific training for CF clinicians is imperative.
  • Addressing outdated notions about parenthood in CF is necessary.