Balancing Parental and Child Interests in Research Subject Compensation
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View abstract on PubMed
Summary
This summary is machine-generated.Parents and minors may disagree on how research compensation should be spent. This study examines the legal and ethical issues when children
Area Of Science
- Bioethics
- Pediatric Research
- Informed Consent
Background
- Compensation for minors in human subject research is common.
- Existing ethical guidelines primarily focus on the receipt of compensation, not its expenditure.
- Divergent views between minors and parents on compensation expenditure present a novel ethical challenge.
Purpose Of The Study
- To explore the ethical and legal complexities arising from differing parental and minor subject views on research compensation expenditure.
- To identify potential strategies for researchers and Institutional Review Boards (IRBs) to navigate these dilemmas.
- To address a gap in the existing literature concerning the post-receipt allocation of research compensation.
Main Methods
- Review of existing legal frameworks governing parental authority over children's assets.
- Analysis of ethical principles related to assent, consent, and beneficence in research involving minors.
- Examination of case studies and hypothetical scenarios illustrating potential conflicts.
- Proposal of practical mechanisms for researchers and IRBs.
Main Results
- Parents typically hold legal authority over compensation received by minors.
- Ensuring compensation aligns with the minor's interests, especially when views diverge, is challenging.
- Current regulations offer limited guidance on resolving disputes over compensation expenditure.
Conclusions
- There is a need for clearer ethical and procedural guidelines for managing research compensation when minors and parents disagree on its use.
- Researchers and IRBs should proactively consider mechanisms to address potential conflicts.
- Protecting the best interests of minor research participants requires attention to the expenditure of their compensation.
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