The communication of a high-grade glioma diagnosis- patients' reflections and perspectives based on a study-specific questionnaire
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View abstract on PubMed
Summary
This summary is machine-generated.Patients diagnosed with high-grade glioma (HGG) need individualized communication and support. Enhancing patient education and involving support systems improves coping and resilience in neuro-oncology.
Area Of Science
- Neuro-oncology
- Patient communication
- Psychological support
Background
- High-grade glioma (HGG) diagnosis presents significant communication and support challenges for patients.
- Understanding patient emotional responses and information needs is crucial for optimizing neuro-oncological treatment.
Purpose Of The Study
- To analyze the communication setting during HGG diagnosis.
- To assess patients' emotional responses and needs for further support and information.
- To optimize neuro-oncological treatment through improved patient education and communication.
Main Methods
- A single-center survey using a 10-item questionnaire was conducted between March and May 2024.
- The questionnaire analyzed communication setting, emotional aspects, needs, and education/information impression in HGG patients.
- Descriptive statistics and Chi Square tests were employed for data analysis.
Main Results
- Most patients (62%) received support from relatives (42%) or partners (22%) upon diagnosis.
- A majority (64%) were satisfied with initial information, but 32% desired more details.
- Patients expressed needs for further information (14%), additional support (12%), and extended conversation time (10%).
Conclusions
- Individualized medical consultations are essential for communicating HGG diagnosis and treatment.
- Involving patients' support systems in treatment discussions is recommended.
- Ongoing community support for patients and caregivers, alongside improved education and accessibility, enhances coping and resilience.
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