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Published on: August 1, 2019
Facilitating Advance Care Planning Conversations Among Patients With Cancer and Their Care Partners Utilizing a
Kylee Kimbel1, Michael Hayes1,2, Morgan Bucher1
1Penn State College of Medicine, Hershey, Pennsylvania, USA.
The Hello game is an acceptable tool for initiating advance care planning conversations among cancer patients and their care partners. Modifications focusing on quality of life and mental health can enhance its use in cancer care.
Area of Science:
- Oncology
- Palliative Care
- Health Communication
Background:
- Advance care planning (ACP) is crucial for cancer patients, yet directive completion rates remain low (55%).
- Current guidelines emphasize early and frequent ACP discussions among patients, clinicians, and care partners (CPs).
- The Hello game, effective in other populations, has not been evaluated for ACP in cancer patients or their CPs.
Purpose of the Study:
- To evaluate the acceptability of the Hello game for advance care planning (ACP) among patients with cancer and their care partners (CPs).
- To identify necessary modifications to the Hello game for optimal use within cancer care settings.
Main Methods:
- Convergent mixed methods study involving seven patient-dyads (n=14).
- Dyads played the Hello game in small groups, followed by satisfaction/acceptability questionnaires and focus groups.
- Qualitative thematic analysis of focus groups and quantitative summary of questionnaire data.
Main Results:
- Participants found the group dynamics and peer interaction enjoyable.
- The Hello game effectively initiated conversations about advance care planning.
- Key modifications suggested include incorporating more questions on quality of life and mental health.
Conclusions:
- The Hello game was well-received by cancer patients and their CPs.
- Feedback facilitated tailoring the game for the cancer context.
- Future research will assess the acceptability of the modified Hello game.
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