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Published on: February 6, 2020
Identifying resource needs of patients with breast cancer by examining alignment of Reddit post content with BREAST-Q
Jessie G Jiang1, Trisha Agarwal1, Madeline G Higgins2
1University of Colorado School of Medicine, CU Anschutz Fitzsimons Building, 13001 East 17th Place, C290, Aurora, CO, 80045, USA.
Background:
Reddit is a popular online forum for breast cancer survivors, but its content is largely unstudied. We compared topics discussed on the r/breastcancer subreddit to BREAST-Q, a validated breast surgery patient-reported outcome measure. We hypothesized that Reddit discussions would align with, yet transcend, BREAST-Q domains (BQDs).
Methods:
The top 1000 original posts (OP) on r/breastcancer were extracted using R studio. Content analysis and thematic coding (TC) were performed independently by five trained coders. Deductive TC was conducted using the BQDs as a framework for themes. Inductive TC was conducted to establish other emerging themes.
Results:
Of the 1000 OPs analyzed, 828 included topics covered by BQDs. All BQDs were represented, including "Psychosocial Well-Being" (57 %), "Physical Well-Being" (18 %), "Satisfaction with Care" (11 %), "Satisfaction with Outcome" (8.0 %), "Satisfaction with Breasts" (3.4 %), and "Sexual Well-Being" (2.5 %).
Conclusions:
Breast cancer survivors would benefit from more resources targeting psychosocial and physical well-being.
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