Adapting and Accepting Type 1 Diabetes: A Qualitative Exploration of the Perspectives from People with Type 1...

Introduction: Divergent theories exist concerning the constructs of adaptation and acceptance for chronic conditions. Understanding these processes is essential to improving care. The aim of this study is to describe these concepts from the perspective of people living with type 1 diabetes. Methods: A secondary analysis was conducted on data from a qualitative study, including interviews with 101 people in 13 countries across all continents, with participants of varying ages, genders, and diabetes durations as well as participants who were parents with children with type 1 diabetes. The initial study included a topic guide with open questions and interviews were analyzed using grounded theory resulting in a pyramid of needs for type 1 diabetes. This pyramid included the concepts of adaptation and acceptance. This study explores these themes in more depth. Results: Adaptation and acceptance processes vary from one person to another. Adaptation includes both adjustment to daily care and a change in perspective. Acceptance is explained as a process relying on adaptation, with no defined standardized stages. Diabetes acceptance positively impacts health, daily life, and relationships. The study identifies several factors that help acceptance, such as medical supplies, a caring healthcare environment, family and peer support, parental acceptance of diabetes, and diabetes camps. Discussion: Some of the elements required for adaptation and acceptance can be provided directly by the healthcare system, such as medical supplies, while others outside the healthcare system still need to be considered by caregivers, such as the individual's social environment. The psychological well-being of people with type 1 diabetes and parents should be investigated as often as possible with the provision of adaptative, integrated, and holistic care.