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Updated: Sep 18, 2025

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Partnering with Family Organizations in Research: Experiences from the Field.

Jessica Holmes1, Tennyson Dahlman1, Eric J Bruns2

  • 1Department of Psychiatry, University of Colorado School of Medicine, Mail Stop F550 1890 N. Revere Court, Anschutz Health and Sciences Building, Suite 5240, Aurora, CO 80045, USA.

International Journal of Environmental Research and Public Health
|June 26, 2025
PubMed
Summary

Parent Peer Support (PPS) helps families navigate mental health care challenges. This research collaboration with Family-Run Organizations (FROs) developed effective research methods to enhance PPS services.

Keywords:
Family-Run OrganizationsNominal Group ProcessParent Peer Supportmental healthparticipatory action researchsystems of care

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Area of Science:

  • Child and Adolescent Mental Health
  • Health Services Research
  • Community-Based Participatory Research

Background:

  • Parent Peer Support (PPS) offers a promising approach to improve outcomes for children with mental health conditions by leveraging caregiver lived experience.
  • Systemic and individual barriers often hinder access to and engagement with mental health care for young people and their families.
  • Family-Run Organizations (FROs) are crucial in delivering community-based support but often require research partnerships to strengthen their services.

Purpose of the Study:

  • To describe the development of a researcher-Family-Run Organization (FRO) collaboration focused on enhancing Parent Peer Support (PPS).
  • To outline the research process across three phases: agenda development, pilot study design, and implementation.
  • To highlight the application of participatory action research (PAR) strategies to ensure research relevance and utility for FROs and the communities they serve.

Main Methods:

  • A three-phase collaborative approach was employed, involving grant writing (PCORI, NIMH) and pilot study design.
  • Participatory Action Research (PAR) principles guided the interdisciplinary team's engagement with FROs.
  • Research methodologies were integrated into FRO operations to maintain organizational missions while advancing research.

Main Results:

  • The collaboration successfully developed a research agenda and refined a measurement framework for a pilot study.
  • PAR strategies facilitated the integration of research into FROs, enhancing the relevance and applicability of findings.
  • The project demonstrated improved dissemination and utilization of research results to support broader PPS initiatives.

Conclusions:

  • Collaborative research partnerships between academics and FROs are effective in advancing Parent Peer Support.
  • Participatory Action Research is a valuable framework for ensuring research is relevant, actionable, and beneficial to community-based organizations.
  • This model can enhance the capacity of FROs to conduct research and improve mental health service delivery for children and families.