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Updated: Sep 17, 2025
Integrating Augmented Reality Tools in Breast Cancer Related Lymphedema Prognostication and Diagnosis
Published on: February 6, 2020
Cross-Cultural Adaptation of the Breast Cancer and Lymphedema Symptom Experience Index in Bengali
Vincent Singh Paramanandam1,2, Elizabeth Dylke2, Mei R Fu3
1Macquarie University, Sydney, New South Wales, Australia.
Introduction:
Breast cancer-related lymphedema is associated with a myriad of distressing symptoms and significantly impacts survivors' quality of life. The Breast Cancer-related Lymphedema Symptom Experience Index (BCLE-SEI) is a validated patient-reported outcome measure (PROM), but is unavailable in Indian languages. This study aimed to cross-culturally adapt the BCLE-SEI into the Bengali language.
Method:
Following established guidelines, the BCLE-SEI was translated, back-translated, and validated in 168 Bengali-speaking women with or at risk of lymphedema.
Results:
Content validity was confirmed by ≥98% of participants. Exploratory factor analysis identified two factors in symptom occurrence and distress subscales, explaining 43.9% and 51% of the variance, respectively. Internal consistency (α) was >0.85, and construct validity was supported with over 50% of predefined hypotheses met. Test-retest reliability (intraclass correlation coefficient [ICC2,1]) was .46 (95% confidence interval [CI] = [-0.2, 0.8], p = .076).
Discussion:
The BCLE-SEI-Bengali is a reliable and valid PROM for assessing lymphedema-related symptoms for Bengali-speaking women.
