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Author Spotlight: Evaluating the Therapeutic Efficacy of Moving Cupping Along Meridians for Acute Exacerbation of COPD
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How People with COPD Perceive and Communicate Exacerbations: A Multicountry Survey Study.

Frits M E Franssen1, Ruth Young2, Job F M van Boven3

  • 1Department of Respiratory Medicine, Maastricht University Medical Centre, Maastricht, the Netherlands.

International Journal of Chronic Obstructive Pulmonary Disease
|July 1, 2025
PubMed
Summary
This summary is machine-generated.

Patients with chronic obstructive pulmonary disease (COPD) often struggle to recognize and report exacerbations. Their descriptions of exacerbations focus on subjective symptom worsening and daily activity impacts, differing from clinical definitions.

Keywords:
chronic obstructive pulmonary diseasecoughobservationalquality of lifesymptoms

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Area of Science:

  • Pulmonary Medicine
  • Patient-Reported Outcomes
  • Health Communication

Background:

  • Exacerbations significantly impair quality of life and accelerate disease progression in chronic obstructive pulmonary disease (COPD).
  • Patients often under-report exacerbations due to difficulties in recognition.
  • Understanding patient perception and communication of exacerbations is crucial.

Purpose of the Study:

  • To investigate how individuals with COPD perceive and communicate their experiences of exacerbations.
  • To identify discrepancies between patient-reported exacerbations and clinical definitions.

Main Methods:

  • A cross-sectional survey with an open-ended question was administered to COPD patients recruited from online panels across six countries.
  • Targeted literature review and input from patients and clinicians informed survey development.
  • Thematic analysis was used to interpret qualitative responses regarding exacerbation experiences.

Main Results:

  • A majority of respondents (72.7%) experienced daily shortness of breath, with 48.7% noting slight daily symptom changes.
  • Exacerbations were described narratively, encompassing subjective symptoms, management, causes, and emotions, without a uniform term.
  • Respondents identified exacerbations as "worse than usual" symptoms (52.8%) or increased difficulty with daily activities (50.1%).

Conclusions:

  • A gap exists between patients' self-reported confidence in identifying exacerbations and their lived experiences versus clinical language.
  • Patient narratives highlight subjective symptom changes and functional impact.
  • Utilizing plain language in a discussion guide may enhance patient-provider communication regarding exacerbations.