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Exploring pediatric palliative care in Luxembourg: a mixed-methods study.

Micha Massaad1, Julia Downing2, Emilie Allard3

  • 1Faculty of Science, Technology and Medicine, Department of Life Sciences and Medicine, University of Luxembourg, 2, place de l'Université, Esch-sur-Alzette, L-4365, Luxembourg. micha.massaad@uni.lu.

BMC Palliative Care
|July 2, 2025
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Summary

Luxembourg has a significant unmet need for pediatric palliative care, with 500-600 children requiring services annually. The current system lacks adequate structure and resources, necessitating urgent development of specialized care for children with life-limiting conditions.

Keywords:
ChildrenHealth policiesLife-limiting conditionsLife-threatening conditionsLuxembourgPaediatric palliative carePalliative care servicesPediatric palliative care

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Area of Science:

  • Healthcare Services Research
  • Pediatric Oncology
  • Palliative Care Medicine

Background:

  • An estimated 170,000 children in the WHO European Region lack access to palliative care annually.
  • Luxembourg faces a data deficit and limited infrastructure for pediatric palliative care.
  • This study addresses the current state of pediatric palliative care in Luxembourg.

Purpose of the Study:

  • To assess the current provision of pediatric palliative care services in Luxembourg.
  • To evaluate the existing legal framework concerning pediatric palliative care.
  • To estimate the number of children requiring palliative care in Luxembourg.

Main Methods:

  • A parallel convergent mixed-methods approach was utilized, integrating qualitative and quantitative data.
  • Data collection involved document analysis, email correspondence, and open-ended interviews with healthcare providers.
  • Thematic analysis was applied to qualitative data, while quantitative data underwent descriptive and inferential statistical analysis.

Main Results:

  • A substantial gap exists in pediatric palliative care provision across all service levels in Luxembourg.
  • Annually, an estimated 500-600 children up to 19 years old require palliative care, exceeding prior estimates.
  • Existing legal frameworks are adult-centric, and specialized pediatric palliative care options, including homecare, are limited, leading to international transfers or inadequate home services.

Conclusions:

  • This study provides the first data on pediatric palliative care in Luxembourg, detailing service availability, legal aspects, and care needs.
  • There is an urgent requirement for a structured pediatric palliative care service to meet the growing demand and address unmet needs.
  • Supporting the national plan for end-of-life and palliative care (2023-2026), with its child-specific focus, is crucial for improving care.