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Home-based rehabilitation experience of children with congenital muscular torticollis: a qualitative study
Youqiong Lu1, Lin Mo2, Gefang Li1
1Department of Orthopedics Children's Hospital of Chongqing Medical University, National Clinical Research Center for Child Health and Disorders, Ministry of Education Key Laboratory of Child Development and Disorders, Chongqing Key Laboratory of Structural Birth Defects and Reconstruction, Children's Hospital of Chongqing Medical University, Chongqing, P.R. China.
Background:
Early physical therapy holds significant importance for the rehabilitation of children with congenital muscular torticollis. Comprehensive physical therapy combined with home-based care intervention has been developed as well; However, certain issues persist in practical application, such as poor caregiver compliance, inability to adhere to rehabilitation in the long term, lack of disease - related knowledge, etc. Thus, this study aims to offer a reference for the formulation of a home-based rehabilitation program for this population by comprehending the actual experience and requirements of home-based rehabilitation for children with congenital muscular torticollis.
Methods:
Through purposive sampling, a descriptive phenomenological study was conducted on family members of children with congenital muscular torticollis from two hospitals in Chongqing Province, China. Semi-structured in-depth interviews were carried out either face-to-face or via video conferencing in the hospital conference room and were evaluated using Colaizzi's 7-step phenomenological analysis.
Results:
A total of 11 primary caregivers of children with congenital muscular torticollis were interviewed, and 9 categories were derived from this study. There were 3 themes for the home-based rehabilitation of children with congenital muscular torticollis: (1) Perceptions and attitudes, (2) Dilemmas, and (3) Trust and need.
Conclusion:
The findings indicate that during the home-based rehabilitation process, the primary caregivers of children with congenital muscular torticollis have diverse needs and difficulties. The respondents expressed their hope that medical workers could enhance communication with them, provide professional support, and urge them to adhere to training. Among the numerous needs, the teaching of professional knowledge and skills for home-based rehabilitation training is the most desired.
Clinical Trial Number:
Not applicable.
