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Using Visual and Narrative Methods to Achieve Fair Process in Clinical Care
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Mapping Primary Progressive Aphasia Best Practices to a Person-Centered Video Biopic.

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A video biopic significantly improved graduate students' understanding of primary progressive aphasia (PPA), particularly its lived experience and best practices. The film effectively conveyed the impact of PPA and aligned with established care principles.

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Area of Science:

  • Neurology
  • Medical Education
  • Patient Advocacy

Background:

  • Primary progressive aphasia (PPA) presents unique challenges to patients and requires specialized understanding.
  • Effective educational tools are needed to improve healthcare professionals' comprehension of PPA's lived experience and best practices.

Purpose of the Study:

  • To evaluate the impact of a collaboratively developed video biopic on graduate students' understanding of PPA.
  • To assess the biopic's effectiveness in conveying the lived experience of PPA and identifying best practice principles.

Main Methods:

  • A post-then-pre survey design was employed with 22 graduate students.
  • Participants assessed their understanding of PPA's neurological aspects and lived experience before and after viewing the biopic.
  • Students identified the presence of PPA best practice principles within the film, analyzed using quantitative and qualitative methods.

Main Results:

  • Viewing the biopic led to significant improvements in students' understanding of both the neurological and lived experience of PPA.
  • The impact on understanding the lived experience of PPA was more pronounced than on the neurological aspects.
  • All seven PPA best practice principles were identified within the biopic by participants.

Conclusions:

  • Video biopics can be a powerful tool for enhancing understanding of complex conditions like PPA.
  • This approach effectively increases awareness and application of evidence-based practices in patient care.
  • Collaborative, stakeholder-engaged media can significantly improve medical education and empathy.