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Patient-Reported Outcome Measures of Transmasculine Voice: A Scoping Review
Alexandra B Beam1, Michelle Adessa2, Rachel Mulheren3
1Department of Otolaryngology-Head and Neck Surgery, Johns Hopkins University School of Medicine, Baltimore, Maryland.
Patient-reported outcome measures for transmasculine voice care show limited validity. Barriers to care impact quality of life (QOL) and participation. Further research is needed to improve these measures.
Area of Science:
- Health Services Research
- Speech and Language Therapy
- Gender Studies
Background:
- Gender-affirming voice care is crucial for transmasculine individuals' self-perception.
- Voice therapy aims to improve voice-related quality of life (QOL) and participation.
- Existing patient-reported outcome measures (PROMs) for this population require thorough evaluation.
Purpose of the Study:
- To review existing PROMs assessing voice-related QOL, participation, and gender congruence in transmasculine individuals.
- To identify limitations in current outcome measures and their applicability.
- To hypothesize improvements in QOL and participation following voice therapy.
Main Methods:
- A scoping review of online databases was conducted.
- Search terms included voice, speech therapy, transmasculine clients, and QOL.
- Studies were included if they reported transmasculine participants, voice therapy engagement, and at least one PROM.
Main Results:
- Five studies were included, utilizing diverse outcome measures.
- The Voice Handicap Index (VHI) showed varied results, with masculine participants reporting higher handicaps and barriers to care.
- Measures like the Utah Gender Presentation Scale for Communication (U-GPS), Communicative Participation Item Bank (CPIB), and Transsexual Voice Questionnaire Female to Male (TVQFtM) demonstrated limitations in validity and representativeness.
Conclusions:
- Current PROMs for transmasculine voice care possess limited validity and rely on small sample sizes.
- Barriers to accessing care can negatively affect participation and QOL.
- Future research should focus on prospectively validating instruments, ensuring representative samples, and developing community-informed measures.
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