Exploring the public's perception and understanding of Parkinson's disease in Ireland: a study protocol

There appears to be a lack of empirical investigation on how the public currently understands Parkinson's Disease (PD)and the impact this has on people with PD and their carers, across Ireland. This research hopes to build a greater public understanding of PD, reduce stigma and improve the quality of life for people with PD. The aim of this study is to (1) explore public perceptions, awareness and understanding about PD across the island of Ireland and (2) discover how this impacts people with PD and their families.

This study will adopt a mixed-methods, sequential explanatory methodology across four phases. This will include a systematic review of the literature, semi-structured interviews with people with PD and their carers, and focus groups with specialist PD professionals to determine how public perception impacts those living with PD. Following this, an online Delphi survey will be conducted with PD experts to determine a list of key priority areas for PD education.

PD affects a large population of people worldwide and this number is expected to increase due to a progressively ageing population. There is a lack of empirical research exploring what the public know about PD and the impact this has on people living with the disease particularly in Ireland, therefore it is vital that we determine a list of priority areas for increasing PD awareness to improve the quality of life of those living with PD.