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A Community-Led Approach to Addressing Health Disparities Among Adolescent and Young Adult Cancer Survivors
Lauren V Ghazal1,2, Alison Silberman3, Ruzette Solis3
1University of Rochester School of Nursing, Rochester, New York, USA.
Journal of Adolescent and Young Adult Oncology
|July 3, 2025
Summary
Community-driven conversations revealed that racism, homophobia, transphobia, and ableism impact adolescent and young adult (AYA) cancer care. Solutions were co-developed to address these health care inequities for AYA cancer survivors.
Area of Science:
- Oncology
- Health Equity
- Community Health
Background:
- Adolescent and young adult (AYA) cancer survivors face significant health disparities.
- Limited evaluation exists on community-based organizations' role in addressing these disparities.
Purpose of the Study:
- To understand the impact of discrimination on supportive cancer care for AYAs.
- To develop community-driven solutions for health care inequities.
Main Methods:
- A Health Equity Initiative involved virtual focus groups, working groups, and town halls (2021-2023).
- Thematic analysis was performed on transcripts from community-driven conversations.
Main Results:
- Three key themes emerged: perception, transition, and representation.
- Four solutions were co-developed with community members to address identified inequities.
Conclusions:
- Inclusivity and representation are crucial for quality AYA cancer care.
- Further research and quality improvement initiatives are needed to mitigate health care disparities for AYAs.
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