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Who uses self-management apps from the OncoAppstore: description of characteristics, symptoms, and functioning of a
A M de Korte1,2, L van Deursen3,4,5, M L van der Lee6,7
1The Netherlands Comprehensive Cancer Organisation, Utrecht, The Netherlands. a.dekorte@iknl.nl.
Purpose:
The rising prevalence of cancer in the Netherlands challenges resource allocation and sustainable care delivery. eHealth interventions, such as self-management applications, may reduce healthcare utilisation. To enhance access to self-management tools, the OncoAppstore was launched in July 2023. This study evaluates the sociodemographic and health-related quality of life (HRQoL) characteristics of OncoAppstore users.
Methods:
User data from the OncoAppstore and HRQoL data were integrated with clinical data from the Netherlands Cancer Registry. Descriptive analyses were used to describe sociodemographic and clinical characteristics. Chi-square and Mann-Whitney U tests compared OncoAppstore users with the Dutch adult cancer population.
Results:
A total of 3620 users requested a health credit, and 4333 applications were purchased. Most users were highly educated (61%), had breast cancer (50%) and a high socioeconomic position (53%). Compared to non-users, OncoAppstore users were younger (56 vs 69), predominantly female (78% vs 55%), more often received primary treatment, and were diagnosed earlier. The majority indicated clinically significant distress levels and approximately half reported substantial functional impairments. Symptom burden was highest in the fatigue, pain, and nausea/vomiting domains. CONCLUSION AND IMPLICATIONS FOR CANCER SURVIVORS: The OncoAppstore is primarily utilised by highly educated users who seek applications targeting cancer-related fatigue. Insights into the characteristics of users who are receptive to online self-management tools contribute to the improvement of self-management infrastructure and its long-term integration into Dutch cancer care. By providing self-management tools to those who are able to use it, we can potentially save scarce resources for those who are unable to profit from self-management alone.
Insights
The OncoAppstore is mainly used by highly educated cancer patients, particularly those with breast cancer, seeking support for fatigue. This highlights a need to tailor digital self-management tools for broader cancer patient populations.
Area of Science:
- Oncology
- Digital Health
- Cancer Survivorship
Background:
- Rising cancer prevalence strains healthcare resources.
- eHealth interventions, like self-management apps, can potentially reduce healthcare utilization.
- The OncoAppstore was launched to improve access to digital self-management tools for cancer patients.
Purpose of the Study:
- To evaluate the sociodemographic characteristics of OncoAppstore users.
- To assess the health-related quality of life (HRQoL) among OncoAppstore users.
- To compare OncoAppstore users with the broader Dutch adult cancer population.
Main Methods:
- User data from OncoAppstore integrated with Netherlands Cancer Registry data.
- Descriptive analyses for sociodemographic and clinical characteristics.
- Chi-square and Mann-Whitney U tests for user comparisons.
Main Results:
- OncoAppstore users were predominantly highly educated (61%), had breast cancer (50%), and were younger (56 vs. 69) and more often female (78% vs. 55%) than non-users.
- Users reported significant distress and functional impairments, with fatigue, pain, and nausea/vomiting as primary concerns.
- The platform was primarily utilized by users seeking applications for cancer-related fatigue.
Conclusions:
- The OncoAppstore is predominantly used by a highly educated demographic seeking fatigue management tools.
- Understanding user characteristics aids in optimizing digital self-management infrastructure for cancer care.
- Targeted self-management tools can potentially conserve resources for patients needing additional support.
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