Exploring Different Levels of Contact Frequency in Multiple Sclerosis Care

Area of Science:

• Neurology
• Healthcare Research
• Public Health

Background:

• Multiple sclerosis (MS) care varies significantly among individuals, impacting healthcare needs and costs.
• Previous research indicates a need for a deeper understanding of factors influencing healthcare utilization in MS.
• This study addresses the need to explore varying levels of healthcare contact frequency in persons with MS.

Purpose of the Study:

• To explore different levels of healthcare contact frequency among persons living with multiple sclerosis (MS).
• To identify factors influencing healthcare contact frequency in MS patients.
• To understand the relationship between healthcare contacts, symptoms, function, and health experiences in MS.

Main Methods:

• A parallel mixed-methods approach integrating quantitative and qualitative data.
• Data sourced from hospital administrative systems, the Swedish national MS registry, and interviews.
• Population segmented into four groups based on healthcare contact frequency for analysis.

Main Results:

• Increased healthcare contact frequency correlated with more severe symptoms, reduced function, and poorer health experiences.
• Age, gender, overall health, and expanded disability status influenced segment probability.
• Qualitative data revealed increased physical limitations and acknowledged comorbidities; personalized care content was suggested.

Conclusions:

• Higher healthcare contact frequency in MS is associated with increased symptom burden, functional decline, and diminished health perception.
• Key influencing factors include age, gender, overall health, and expanded disability.
• Individual experiences and comorbidities necessitate personalized healthcare approaches, highlighting potential gaps in self-care and personal context support.