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Culturally Informed Digital Behavioral Intervention Development for Inflammatory Bowel Disease: A Qualitative Study
Ruby Greywoode1, Alicia Philippou1, Thomas Ullman1
1Montefiore Medical Center, Division of Gastroenterology, Bronx, NY, USA.
Racial and ethnic background significantly impacts how Black and/or Hispanic patients perceive inflammatory bowel disease (IBD) and their openness to digital mental health tools. Tailoring digital interventions can improve engagement for diverse IBD populations.
Area of Science:
- Gastroenterology
- Behavioral Medicine
- Health Disparities
Background:
- Psychological distress is linked to inflammatory bowel disease (IBD) activity, prompting integration of behavioral medicine.
- Qualitative data explored lived experiences of Black and/or Hispanic IBD patients to understand influences on intervention receptivity.
- Focus on digital mind-body interventions for psychological distress in IBD.
Purpose of the Study:
- To understand how racial and ethnic background influences IBD illness perceptions.
- To assess receptivity to digital mind-body interventions for psychological distress among diverse IBD patients.
- To inform the design of equitable digital health tools for IBD.
Main Methods:
- Semi-structured interviews conducted virtually with 25 IBD patients (2022-2023).
- Thematic analysis of audio-recorded interview transcripts.
- NVivo software used for data coding.
Main Results:
- Identified three themes: impact of racial/cultural identity on IBD, gut-brain connection resonance despite mental healthcare barriers, and acceptance of digital technology.
- Digital technology is integrated into daily life for most participants.
- Digitally delivered self-management resources are desired.
Conclusions:
- Racial and ethnic background shapes IBD patients' illness perception, coping strategies, and support needs.
- Findings support tailoring digital behavioral interventions for IBD.
- Intervention design and content adjustments can enhance applicability and equitable engagement for diverse populations.
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