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Healthcare access barriers for Hispanic pediatric nephrology patients: a KICK study

Debora Matossian1, Carlos C Becerril Romero2, Priya S Verghese2

  • 1Ann and Robert H. Lurie Children's Hospital, 225 E. Chicago Ave Box 37, Chicago, IL, USA. dmatossian@luriechildrens.org.

Pediatric Nephrology (Berlin, Germany)
|July 12, 2025
PubMed

Insights

Hispanic children with chronic kidney disease (CKD) face significant healthcare access barriers. Spanish-speaking families and those in disadvantaged areas experience greater challenges, highlighting the need for targeted interventions.

Area of Science:

  • Pediatric Nephrology
  • Health Services Research
  • Health Disparities

Background:

  • Hispanic children experience a high burden of chronic kidney disease (CKD).
  • Barriers in accessing medical care exacerbate health disparities and impact the quality of care for this population.
  • Understanding these barriers is crucial for improving health outcomes.

Purpose of the Study:

  • To identify and characterize the barriers to healthcare access faced by Hispanic pediatric patients with CKD.
  • To explore the influence of socioeconomic factors and language preference on these barriers.

Main Methods:

  • A voluntary "Barriers to Care Questionnaire" was administered to Hispanic young adults or parents of pediatric patients (under 18) from January to June 2021.
  • The survey was available in English and Spanish.
  • Area Deprivation Index (ADI) was used as a marker for socioeconomic disadvantage, alongside sociodemographic and health data from medical records.

Main Results:

  • Skills and pragmatic barriers were prevalent, with mean scores of 74 and 75 respectively (out of 100).
  • Spanish-speaking families reported significantly higher skills barriers (p < 0.001).
  • Higher ADI scores correlated with increased total barriers (p = 0.04), a relationship further amplified by preferred language (p = 0.003).

Conclusions:

  • Hispanic pediatric patients with kidney disease encounter substantial barriers affecting their healthcare engagement.
  • Spanish-speaking families are disproportionately affected.
  • Further research is needed to inform policy and program changes aimed at reducing disparities in pediatric nephrology care access.
Abstract

Keywords:
BarriersChronicHispanicKidneyPediatricsSpanish

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