Related Experiment Video
Updated: Sep 15, 2025

E-Patient Counseling Trial E-PACO: Computer Based Education versus Nurse Counseling for Patients to Prepare for Colonoscopy
Published on: August 1, 2019
Patient Reported Outcome Measures for Dutch Patients with an Abdominal Aortic Aneurysm: Validation and Introduction
Desiree van den Hondel1, Mattanja Triemstra2, Michel P J Reijnen3
1Department of Surgery, Rijnstate, Arnhem, the Netherlands.
Objective:
This study aimed to develop, validate, and introduce two patient reported outcome measures (PROMs) for patients with abdominal aortic aneurysm (AAA): the AAA-Symptoms and AAA-Quality of Life (AAA-QoL).
Methods:
This was a longitudinal cohort study. The PROMs were based on two previously developed questionnaires, the Aneurysm Symptom Rating Questionnaire and the Aneurysm Dependent Quality of Life Questionnaire, which were translated into Dutch, pre-tested with cognitive interviews, modified, and optimised after psychometric analyses of longitudinal data. The AAA-Symptoms questionnaire consists of a total scale and five subscales (mental, pain, frailty, abdominal, and legs), and the AAA-QoL questionnaire consists of a total scale and three subdomains (wellbeing, participation, and leisure). Patients completed the questionnaires after diagnosis, prior to follow up consultations, and before and after surgery between 2021 and 2024. Construct and criterion validity, responsiveness, and minimum important change were analysed. Cronbach's α was used to assess the internal consistency of the subscales. An electronic dashboard was created to provide insight into the outcomes.
Results:
Four hundred and seventy-five patients with AAA were included. Response rates varied from 100% at baseline, to 78 - 100% during surveillance, 95% pre-surgery, and 59 - 77% post-surgery (91.5% underwent endovascular repair). Both the AAA-Symptoms and AAA-QoL questionnaires had acceptable to excellent internal consistency (α = 0.58 - 0.87 and α = 0.87 - 0.96, respectively). Convergent and divergent validity were supported by moderate and weak interscale correlations within and between the scale scores of the two questionnaires, respectively. All quality of life outcomes improved after surgery, particularly patients' wellbeing, mental, and abdominal symptoms.
Conclusion:
Two disease specific PROMs (AAA-Symptoms and AAA-QoL) for patients with AAA were developed and validated. The findings support the validity, reliability, and responsiveness of these PROMs. Both PROMs can be used in daily practice.
More Related Videos
08:28Isolation of Primary Patient-specific Aortic Smooth Muscle Cells and Semiquantitative Real-time Contraction Measurements In Vitro
Published on: February 15, 2022
13:48Reduction of Radiation Exposure during Endovascular Treatment of Peripheral Arterial Disease Combining Fiber Optic RealShape Technology and Intravascular Ultrasound
Published on: April 21, 2023
Related Concept Videos
Aneurysm II: Clinical Manifestations and Diagnostic Studies
Aneurysm III: Interprofessional Care
Aneurysm IV: Nursing Management
Peripheral Arterial Disease II: Clinical Manifestations and Diagnostic Evaluation
Aortic Regurgitation III: Medical Management
Aortic Regurgitation I: Introduction