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Provider Experiences With Systematically Administered Patient-Reported Outcome Measures in Multiple Sclerosis: A

Nathan Y Chu1, Aila Jamali1, Yazid N Al Hamarneh2,3

  • 1Faculty of Medicine and Dentistry, Division of Neurology, Department of Medicine, University of Alberta, Edmonton, Canada.

Neurology. Clinical Practice
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Summary

Patient-reported outcome measures (PROMs) can improve multiple sclerosis (MS) care by engaging patients and enhancing efficiency. However, integrating PROMs into MS clinics faces barriers like workflow disruptions and technology issues.

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Area of Science:

  • Neurology
  • Health Services Research
  • Patient-Reported Outcomes

Background:

  • Patient-reported outcome measures (PROMs) are valuable for assessing patient experiences in multiple sclerosis (MS) care.
  • Routine integration of PROMs into MS outpatient clinics remains limited.
  • Understanding provider perspectives is crucial for successful PROM implementation.

Purpose of the Study:

  • To explore healthcare providers' perspectives on integrating PROMs into clinical practice for persons with MS (PwMS).
  • To identify facilitators and barriers to PROM adoption in MS care settings.

Main Methods:

  • Qualitative substudy involving semistructured interviews with 10 MS healthcare providers.
  • Thematic analysis of interview transcriptions using a mixed inductive and deductive approach.
  • Participants included neurologists, MS nurse practitioners, and MS registered nurses.

Main Results:

  • Providers identified benefits of PROMs, including improved patient engagement, goal setting, efficiency, and satisfaction.
  • Barriers included clinical workflow disruptions, technological challenges, skepticism about PROM validity, and ethical considerations.
  • Suggested future opportunities involved pre-visit PROMs and EHR integration.

Conclusions:

  • MS providers view PROMs as a valuable adjunct tool for optimizing patient care and experiences.
  • Addressing identified barriers is essential for the strategic implementation of routine PROMs in MS clinics.