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Provider Experiences With Systematically Administered Patient-Reported Outcome Measures in Multiple Sclerosis: A
Nathan Y Chu1, Aila Jamali1, Yazid N Al Hamarneh2,3
1Faculty of Medicine and Dentistry, Division of Neurology, Department of Medicine, University of Alberta, Edmonton, Canada.
Neurology. Clinical Practice
|July 14, 2025
Summary
Patient-reported outcome measures (PROMs) can improve multiple sclerosis (MS) care by engaging patients and enhancing efficiency. However, integrating PROMs into MS clinics faces barriers like workflow disruptions and technology issues.
Area of Science:
- Neurology
- Health Services Research
- Patient-Reported Outcomes
Background:
- Patient-reported outcome measures (PROMs) are valuable for assessing patient experiences in multiple sclerosis (MS) care.
- Routine integration of PROMs into MS outpatient clinics remains limited.
- Understanding provider perspectives is crucial for successful PROM implementation.
Purpose of the Study:
- To explore healthcare providers' perspectives on integrating PROMs into clinical practice for persons with MS (PwMS).
- To identify facilitators and barriers to PROM adoption in MS care settings.
Main Methods:
- Qualitative substudy involving semistructured interviews with 10 MS healthcare providers.
- Thematic analysis of interview transcriptions using a mixed inductive and deductive approach.
- Participants included neurologists, MS nurse practitioners, and MS registered nurses.
Main Results:
- Providers identified benefits of PROMs, including improved patient engagement, goal setting, efficiency, and satisfaction.
- Barriers included clinical workflow disruptions, technological challenges, skepticism about PROM validity, and ethical considerations.
- Suggested future opportunities involved pre-visit PROMs and EHR integration.
Conclusions:
- MS providers view PROMs as a valuable adjunct tool for optimizing patient care and experiences.
- Addressing identified barriers is essential for the strategic implementation of routine PROMs in MS clinics.
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