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Patients' priorities in kidney stone disease
V Popoola1, G Wheeler1, S A Howles1,2
1University of Oxford, UK.
Annals of the Royal College of Surgeons of England
|July 15, 2025
Summary
Patients with kidney stone disease (KSD) prioritize research on pain relief, recurrence prevention, and personalized medicine. They show a strong willingness to use oral medications and undergo genetic testing for better treatment outcomes.
Area of Science:
- Urology
- Nephrology
- Patient-centered research
Background:
- Patient engagement is crucial for impactful research and improved clinical care.
- Tailoring treatments to patient preferences enhances research relevance and clinical outcomes.
- Understanding patient priorities is key to advancing kidney stone disease (KSD) management.
Purpose of the Study:
- To identify the research, support, and treatment priorities of individuals with kidney stone disease (KSD).
- To inform the development of patient-centered research and clinical strategies for KSD.
Main Methods:
- A 25-question survey was administered to patients with KSD in urology departments.
- Data were collected from both inpatient and outpatient settings.
- Survey responses were analyzed to determine patient priorities.
Main Results:
- Pain, hematuria, and anxiety significantly impact the quality of life (QoL) for KSD patients.
- Patients prioritize research on preventing stone recurrence, alleviating pain, and slowing stone growth.
- A majority expressed willingness for genetic testing and commitment to long-term oral medication for risk reduction.
Conclusions:
- KSD significantly affects patients' physical and psychological well-being.
- There is a clear need for research into novel therapies for KSD prevention and management.
- Patients are receptive to personalized medicine approaches and oral medications for KSD treatment.
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