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Defining Family-Centered Cancer Care: A Group Concept Mapping Study.

Karla T Washington1, Abigail J Rolbiecki2, Todd D Becker3

  • 1Division of Palliative Medicine, Department of Medicine, Washington University School of Medicine in St. Louis, St. Louis, Missouri, USA.

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|July 17, 2025
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Summary
This summary is machine-generated.

Family members highlighted key areas for improving family-centered cancer care, emphasizing the need for better facility support, financial aid, and education. Addressing these can enhance care for patients and their families.

Keywords:
cancerfacilityfamilyfamily‐centered caregroup concept mappingmixed methodsoncology

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Area of Science:

  • Oncology
  • Patient and Family Support
  • Health Services Research

Background:

  • Family-centered cancer care is crucial but lacks a clear, actionable definition, hindering consistent clinical application.
  • Previous definitions have often overlooked diverse family perspectives, potentially worsening health disparities.

Purpose of the Study:

  • To define essential components of family-centered cancer care by engaging diverse family members of cancer patients.
  • To identify actionable strategies cancer centers can implement to better support patients' families.

Main Methods:

  • A sequential mixed-methods group concept mapping study involving 121 family members (spouses, adult children, etc.).
  • Participants brainstormed, rated, and sorted potential family support strategies.
  • Data analysis included multidimensional scaling, cluster analysis, and descriptive statistics.

Main Results:

  • Family members identified five key clusters of support: Facility Characteristics, Financial Assistance, Family Support, Clinical Operations, and Family Education.
  • All identified responses were rated as important, and 78% were recognized as true to their care experiences.
  • Participants were predominantly spouses/partners (53%) and adult children (22%), with a mean age of 55.

Conclusions:

  • Family members recognize the value of family-centered cancer care but see significant opportunities for enhancement.
  • Implementing improvements in identified areas can strengthen support systems for cancer patients and their families.
  • Addressing these opportunities is vital for improving overall cancer care outcomes.