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Published on: June 23, 2015
Participant Perceptions of Increasing Water Intake in Polycystic Kidney Disease
Sneha Amin1, Irene Sangadi1,2, Margaret Allman-Farinelli3
1Michael Stern Laboratory for Polycystic Kidney Disease, Westmead Institute for Medical Research, The University of Sydney, Sydney, New South Wales, Australia.
Increasing water intake for autosomal dominant polycystic kidney disease (ADPKD) is challenging long-term due to social barriers and fluctuating motivation, despite initial habit formation. Continued adherence depends on perceived medical benefits.
Area of Science:
- Nephrology
- Urology
- Public Health
Background:
- Clinical guidelines recommend adequate hydration for autosomal dominant polycystic kidney disease (ADPKD).
- Long-term patient perceptions of increased water intake and the impact of self-efficacy tools remain underexplored in ADPKD management.
Purpose of the Study:
- To investigate long-term patient experiences with increased water intake in ADPKD.
- To explore the role of self-efficacy tools in maintaining hydration habits in ADPKD patients.
Main Methods:
- A 3-year trial involving participants with ADPKD randomized to increased water intake.
- Semistructured interviews with a subset of participants and a posttrial questionnaire for all participants in the intervention arm.
Main Results:
- Initial motivation for increased water intake waned over time, with social events posing significant barriers.
- Self-efficacy tools like water bottles, urine specific gravity monitoring, and text reminders aided adherence.
- Long-term motivation was linked to the perception of medical benefit, despite established knowledge and habits.
Conclusions:
- While habit formation for increased water intake is achievable, sustained adherence in ADPKD patients is challenged by social factors and requires ongoing motivation.
- The effectiveness of self-efficacy tools varies, with practical aids and positive reinforcement being most beneficial.
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