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Illness perceptions in Raynaud's phenomenon: A qualitative study.

Mashal Hajar Safi1, Paula Smith1, Johanna Meyer1

  • 1University of Bath, UK.

Health Psychology Open
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Summary
This summary is machine-generated.

Raynaud's Phenomenon management in the UK needs improvement. Understanding patient experiences with Raynaud's Phenomenon can inform better self-management strategies and interventions.

Keywords:
Raynaud’s phenomenoncommon-sense model (Leventhal)illness perceptionsqualitative

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Area of Science:

  • Medical Research
  • Psychology
  • Health Services Research

Background:

  • Raynaud's Phenomenon involves extremity vasoconstriction, significantly impacting patient quality of life.
  • Current treatment options in the UK are considered insufficient for managing Raynaud's Phenomenon.
  • This study explores lived experiences to inform future interventions for Raynaud's Phenomenon.

Purpose of the Study:

  • To provide a theoretical foundation for developing new interventions for Raynaud's Phenomenon.
  • To gain insights into the illness experiences of individuals living with Raynaud's Phenomenon.
  • To identify factors influencing self-management adherence in Raynaud's Phenomenon patients.

Main Methods:

  • Thematic analysis of 19 semi-structured interviews with UK-based individuals experiencing Raynaud's Phenomenon.
  • An inductive-deductive approach was employed.
  • The common-sense model of self-regulation informed the analysis.

Main Results:

  • Three key themes emerged: Illness representations, Coping response, and Advice and guidance.
  • These themes illuminate illness perceptions, coping mechanisms, and adherence factors.
  • Findings highlight the potential benefit of a stepped care approach for Raynaud's Phenomenon.

Conclusions:

  • Patient experiences offer crucial insights into managing Raynaud's Phenomenon.
  • A stepped care model may enhance the management of Raynaud's Phenomenon.
  • Further research can build on these findings to improve patient outcomes.