Exploring Dutch citizens' perspectives, expectations, and decision-making regarding health-related direct-to-consumer...

Area of Science:

• Genetics
• Bioethics
• Consumer Health

Background:

• Limited qualitative data exists on European citizens' views on health-related direct-to-consumer genetic testing (DTC-GT).
• Understanding citizen beliefs and decision-making factors is crucial for informed DTC-GT use.

Purpose of the Study:

• To explore Dutch citizens' beliefs, expectations, and attitudes towards health-related DTC-GT.
• To identify factors influencing decision-making for DTC-GT adoption.

Main Methods:

• Twenty semi-structured interviews were conducted with diverse Dutch citizens.
• Participants viewed an educational video and hypothetical DTC-GT company materials.
• Verbatim interview transcripts were analyzed thematically.

Main Results:

• Most participants were unaware of DTC-GT and held misconceptions, expressing significant expectations and distrust towards sellers.
• Dissatisfaction with hypothetical results and personal decision-making factors, including price, were noted.
• Participants desired independent information, quality marks, and enforceable regulation.

Conclusions:

• Citizen expectations and decision-making processes for DTC-GT are highly personal and influenced by various factors.
• Enhanced information, education, quality standards, and regulation are needed to empower responsible DTC-GT use.