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Building a Future without Blindness due to Retinopathy of Prematurity in India: Progress, Challenges, and the Way
Jogender Kumar1, Praveen Kumar2, Ashok Kumar Deorari3
1Neonatal Unit, Department of Pediatrics, Post Graduate Institute of Medical Education and Research, Chandigarh, 160012, India.
Insights
Retinopathy of prematurity (ROP) screening in India faces challenges despite guidelines. Enhancing screening coverage and neonatal care is crucial to prevent childhood blindness.
Area of Science:
- Ophthalmology
- Neonatology
- Public Health
Background:
- Retinopathy of prematurity (ROP) is a significant cause of preventable childhood blindness in India.
- Existing national guidelines and initiatives have not achieved uniform ROP screening coverage across regions.
Purpose of the Study:
- To examine the progress, current status, and challenges of ROP care in India.
- To identify successful strategies and recommend policy actions for improving ROP screening and prevention.
Main Methods:
- Review of progress, current status, and challenges in ROP care in India.
- Analysis of existing national guidelines and initiatives.
- Identification of successful strategies and policy recommendations.
Main Results:
- ROP screening coverage in India is highly variable.
- Key challenges include insufficient screening facilities, lack of trained personnel, low awareness, and delayed referrals.
- Successful strategies involve capacity building, quality improvement, and telescreening.
Conclusions:
- Mandatory ROP screening, increased community awareness, and integrated health system monitoring are recommended.
- Leveraging digital technology and improving neonatal care quality are vital for primary prevention.
- India can develop a model for neonatal eye care for LMICs to prevent ROP-related visual impairment.
Abstract:
Retinopathy of prematurity (ROP) is a leading cause of preventable childhood blindness in India. We examined the progress, current status, and challenges related to ROP in India. Despite national guidelines and initiatives, the coverage of ROP screening remains highly variable across regions. Key challenges include lack of screening facilities, trained personnel, inadequate awareness, and delayed referrals. Successful strategies include capacity building, quality improvement approaches, and telescreening. We recommend policy actions, including mandatory ROP screening arrangements by neonatal care facilities, raising community awareness, and the inclusion of ROP indicators in health system monitoring. Leveraging digital technologies and focusing on primary prevention through improved quality of neonatal care are crucial. With sustained commitment and intersectoral collaboration, India can create a comprehensive model for neonatal eye care for low- and middle-income countries, preventing ROP-related visual impairment and ensuring the right to sight for all infants.
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