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Learning to Live With and Beyond Hematological Cancer: A Narrative Study for a Comprehensive Patient Perspective.

Karine Bilodeau1, Cynthia Henriksen2, Camila Aloisio Alves3

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Summary

This study explored the lived experiences of individuals with hematological cancer, identifying four distinct phases of learning to live with the disease and its recurrence. Understanding these phases can improve patient care.

Keywords:
CanadaCancer care trajectoryCancer survivorshipExperiential learningHematological cancerNarrativeQualitative

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Area of Science:

  • Oncology
  • Qualitative Research
  • Patient Experience

Background:

  • Hematological cancers present unique challenges throughout a patient's life.
  • Understanding the patient journey is crucial for effective care and support.

Purpose of the Study:

  • To describe and conceptualize the lived experiences of individuals with hematological cancer.
  • To explore the experiential learning processes throughout the cancer trajectory.

Main Methods:

  • Narrative qualitative methodology.
  • Remote semi-structured interviews with 12 participants.
  • Hybrid inductive/deductive content analysis.

Main Results:

  • Four phases of the cancer care trajectory were identified: Loss and Disruption, Putting Life on Hold, Rediscovery and Personal Development, and Starting Over.
  • Experiential learning is closely tied to the stages of the care trajectory, key events, and individuals involved.

Conclusions:

  • The hematological cancer care trajectory significantly influences learning to live with the disease.
  • Findings can enhance oncology nurses' sensitivity and understanding of patient journeys.