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Exploration of Psychosocial Issues of Parents in Pediatric Oncology
Joel Mathew Jose1, Gautam Gawali
1Amity Institute of Behavioral and Allied Sciences, Amity University, Mumbai, Maharashtra, India.
Abstract:
Pediatric cancer not only affects the child but also casts a profound shadow on their families, entangling them in emotional turmoil, financial strain, and disruptions to daily life. Although the psychosocial challenges faced by parents of children with cancer are extensively documented, there is a significant gap in understanding how these needs are addressed. This research aims to bridge this void by delving into the psychosocial issues experienced by these parents. Existing literature highlights the psychological distress, financial hardship, and social isolation that parents endure. Stress, anxiety, depression, guilt, and post-traumatic stress disorder (PTSD) emerge as pervasive issues. Parents often grapple with stress stemming from prognosis uncertainty, financial burdens, and the emotional toll of caregiving. Anxiety manifests through constant worry and sleep disturbances, whereas depression brings persistent sadness and appetite changes. Guilt arises from perceived responsibility for the illness, and PTSD symptoms include vivid flashbacks and hypervigilance. These psychosocial issues significantly impact parents' quality of life, leading to sleep disturbances, strained relationships, and compromised self-care. Interventions such as individual and group therapy, along with support groups, play a crucial role in equipping parents with coping skills and stress management strategies. In conclusion, comprehensive support for parents of children with cancer should address emotional distress, practical caregiving, and provide information about the child's diagnosis and treatment. Acknowledging the multifaceted impact of cancer on the family, this research underscores the necessity for tailored interventions to navigate the emotional complexities of parenting and foster resilience amidst adversity.
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