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Development and Validation of a Minimum Dataset for a Pediatric Septic Shock Registry: A Descriptive and

Fariba Shabani1, Seyedeh Narjes Ahmadizadeh2, Shahabedin Rahmatizadeh1

  • 1Department of Health Information Technology and Management, School of Allied Medical Sciences Shahid Beheshti University of Medical Sciences Tehran Iran.

Health Science Reports
|July 30, 2025
PubMed

Insights

A minimum data set was developed to create a pediatric septic shock registry in Iran. This standardized approach is crucial for improving the care and understanding of severe sepsis in children.

Area of Science:

  • Pediatric critical care medicine
  • Health informatics
  • Clinical data management

Background:

  • Pediatric septic shock is a life-threatening condition in children, marked by circulatory dysfunction and cellular damage.
  • Effective data management through registries can significantly improve patient care and treatment outcomes.
  • Developing a dedicated registry for pediatric septic shock is essential for advancing research and clinical practice in Iran.

Purpose of the Study:

  • To develop a comprehensive minimum data set (MDS) for establishing a pediatric septic shock registry.
  • To standardize data collection for pediatric septic shock cases in Iran.
  • To facilitate improved clinical management and research through a centralized data repository.

Main Methods:

  • A descriptive, cross-sectional study conducted in two phases.
  • Phase 1: Literature review to identify relevant data elements.
  • Phase 2: Delphi technique with ten clinicians to validate and refine the MDS, with data analyzed using SPSS 24.

Main Results:

  • An initial set of 190 data elements was categorized into 13 classes and 27 subclasses.
  • Following Delphi validation, 183 data elements were finalized for the MDS based on expert consensus.
  • The finalized MDS provides a structured framework for data collection on pediatric septic shock.

Conclusions:

  • The developed minimum data set is foundational for creating a pediatric septic shock registry in Iran.
  • Standardizing data collection is vital for a holistic understanding of pediatric septic shock.
  • This initiative will support policymakers, researchers, and healthcare providers in developing targeted interventions and improving patient outcomes.
Abstract

Keywords:
common data elementsdata setregistriesseptic shock

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