A co-produced patient-reported outcomes-driven dashboard to support shared decision-making in rheumatologic diseases:...

Area of Science:

• Rheumatology
• Health Informatics
• Digital Health

Background:

• Rheumatologic diseases (RD) require effective shared decision-making (SDM) and monitoring of patient-reported outcomes (PROs).
• Integrating patient data into clinical workflows can enhance care delivery.

Purpose of the Study:

• To explore the potential of a co-produced clinical dashboard for improving SDM and PROs in rheumatology care.
• To assess the usability and user satisfaction of the integrated dashboard.

Main Methods:

• Prospective, single-group, pretest-posttest study with 123 patients with RD.
• PROs collected via patient portal integrated with EHR; data displayed on clinician-accessible dashboard.
• Assessed SDM using CollaboRATE, PROs using PROMIS measures, and usability with System Usability Scale (SUS), SPHERE, and NOMAD scales.

Main Results:

• Significant increase in SDM scores (35% to 55%, p<0.001) post-dashboard integration.
• Clinically significant improvement in Pain Interference for 35.5% of participants.
• Dashboard achieved an above-average usability score (SUS: 75.9).

Conclusions:

• Clinical dashboards co-produced with patients can support SDM and pain management in RD.
• This technology enhances patient-clinician interactions and patient engagement in care.
• The dashboard offers a user-friendly and effective tool for rheumatology care management.