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Related Concept Videos

Ethics in Research01:56

Ethics in Research

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Today, scientists agree that good research is ethical in nature and is guided by a basic respect for human dignity and safety. However, this has not always been the case. Modern researchers must demonstrate that the research they perform is ethically sound.
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Surveys02:16

Surveys

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Often, psychologists develop surveys as a means of gathering data. Surveys are lists of questions to be answered by research participants, and can be delivered as paper-and-pencil questionnaires, administered electronically, or conducted verbally. Generally, the survey itself can be completed in a short time, and the ease of administering a survey makes it easy to collect data from a large number of people.
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Bias01:22

Bias

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Bias refers to any tendency that prevents a question from being considered unprejudiced. In research, bias occurs when one outcome or answer is selected or encouraged over others in sampling or testing. Bias can occur during any research phase, including study design, data collection, analysis, and publication.
In statistics, a sampling bias is created when a sample is collected from a population, and some members of the population are not as likely to be chosen as others (remember, each member...
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Group Design02:01

Group Design

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The most basic experimental design involves two groups: the experimental group and the control group. The two groups are designed to be the same except for one difference— experimental manipulation. The experimental group gets the experimental manipulation—that is, the treatment or variable being tested—and the control group does not. Since experimental manipulation is the only difference between the experimental and control groups, we can be sure that any differences between...
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Community Based Intervention01:30

Community Based Intervention

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Community-based interventions in mental health represent a paradigm shift from institution-centered care to treatments embedded within the fabric of local communities. By prioritizing inclusion and leveraging existing societal structures, this approach fosters a supportive environment conducive to addressing mental health challenges while promoting individual dignity and agency.
Foundations of Community Mental Health Programs
Central to the success of community-based interventions is the...
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Longitudinal Research02:20

Longitudinal Research

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Sometimes we want to see how people change over time, as in studies of human development and lifespan. When we test the same group of individuals repeatedly over an extended period of time, we are conducting longitudinal research. Longitudinal research is a research design in which data-gathering is administered repeatedly over an extended period of time. For example, we may survey a group of individuals about their dietary habits at age 20, retest them a decade later at age 30, and then again...
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Related Experiment Video

Updated: Sep 13, 2025

A Novel Method for Involving Women of Color at High Risk for Preterm Birth in Research Priority Setting
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From Dialogue to Action: Community Recommendations for Inclusive Research Participation Among Underrepresented

Samuel Byiringiro1, Grace C Bellinger2, Akunna Mezu1,3

  • 1School of Nursing, Johns Hopkins University, Baltimore, Maryland, USA.

Health Expectations : an International Journal of Public Participation in Health Care and Health Policy
|July 31, 2025
PubMed
Summary

To improve clinical research diversity, researchers must build trust and engage underrepresented groups like Black/African Americans and Latinos through tailored outreach and accessible accommodations. This enhances health equity.

Keywords:
clinical researchdiversity in researchequitable researchunderrepresented populations

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Area of Science:

  • Health Equity
  • Clinical Research
  • Community Engagement

Background:

  • Clinical research is vital for medical advancement.
  • Black/African American and Latino populations are underrepresented in clinical trials.
  • This disparity contributes to poorer health outcomes for these groups.

Purpose of the Study:

  • To examine perspectives on clinical research recruitment and engagement.
  • To identify barriers and solutions for involving underrepresented populations.
  • To inform strategies for more inclusive clinical research.

Main Methods:

  • Conducted focus group discussions (FGDs) with 59 community members and leaders from underrepresented groups in Baltimore, Maryland.
  • Utilized community outreach, a research registry, and referrals for participant recruitment.
  • Applied thematic analysis to qualitative data from FGDs conducted in English or Spanish.

Main Results:

  • Identified key barriers to research participation, including lack of trust and engagement.
  • Proposed community-informed solutions: building relationships, transparent communication, multimodal outreach, and person-centered accommodations.
  • Demonstrated how recommendations can enhance the relevance, rigor, and reach of clinical research.

Conclusions:

  • Underrepresentation of Black/African American and Latino individuals in research impedes health equity.
  • Researchers must adopt tailored, community-aligned strategies for inclusive engagement.
  • Implementing these strategies can foster greater participation and improve health outcomes.