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Capturing Community Perspectives in a Statewide Cancer Needs Assessment: Online Focus Group Study.

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Online focus groups in Kentucky identified community needs and solutions for cancer care. Findings highlight improving access to information, screening, and patient-provider communication to reduce cancer disparities.

Keywords:
cancerfocus groupshealth equityneeds assessmentqualitative researchvirtual data collection

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Area of Science:

  • Public Health
  • Cancer Research
  • Health Disparities

Background:

  • Kentucky faces the highest cancer incidence and mortality rates in the U.S.
  • Statewide needs assessments present challenges in capturing diverse rural and urban data.
  • A steering committee initiated a multimethod, statewide cancer needs assessment (CNA) in 2021.

Purpose of the Study:

  • To document community resources and needs across the cancer care continuum via online focus groups.
  • To explore the impact of social determinants of health on populations with health disparities.
  • To inform future priorities for cancer-related care in Kentucky.

Main Methods:

  • Conducted 11 online focus groups with 51 adult Kentucky residents from diverse geographic and demographic backgrounds.
  • Utilized a semistructured discussion guide focusing on the cancer care continuum, social determinants of health, and health equity.
  • Performed a qualitative line-by-line analysis of transcripts to identify key themes.

Main Results:

  • Identified 17 primary themes and 83 subthemes related to community needs and solutions for cancer care.
  • Key needs include accessible information, trusted messaging, practical support for screening/treatment (cost, transportation), and insurance navigation.
  • Participants emphasized culturally sensitive communication and safe care spaces to address stigma and improve health equity.

Conclusions:

  • Online focus groups effectively captured diverse, statewide cancer-related needs and solutions.
  • Findings support targeted interventions for risk reduction, overcoming screening/treatment barriers, patient navigation, and communication.
  • The study provides a valuable understanding for future programs and research to reduce cancer incidence and mortality in Kentucky.