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Influential Factors when Making Decisions About Dementia Medications in Memory Assessment Services; a Focused
Rachael Kelley1, Claire A Surr1, Gregor Russell2
1Centre for Dementia Research, Leeds Beckett University, Leeds, UK.
Decisions about dementia medications are often based on perceived risk rather than proven benefits due to communication challenges. Clearer, standardized information on medication risks and benefits is needed for patients and clinicians.
Area of Science:
- Gerontology
- Pharmacology
- Communication Studies
Background:
- Discussing dementia medications is complex due to disease variability, limited curative options, and communication barriers.
- Shared decision-making in dementia care is often restricted.
- This study investigates communication dynamics surrounding dementia pharmacotherapy in clinical practice.
Purpose of the Study:
- To examine how dementia medications are discussed in clinical settings.
- To understand the factors influencing decision-making regarding dementia pharmacotherapy.
- To identify communication strategies and information needs in dementia medication discussions.
Main Methods:
- Utilized focused video/audio ethnography of 14 clinical appointments.
- Conducted semi-structured interviews with 23 patients/supporters and 5 clinicians.
- Employed qualitative methods to analyze communication practices and decision-making processes.
Main Results:
- Identified themes of "Framing and understanding of information in the context of uncertainty" and "'Not worth the risk' or 'nothing to lose'."
- Risk perception significantly influenced decision-making, especially for vulnerable patients, when benefits were uncertain.
- Clinicians' framing of information, often based on experience, impacts patient and supporter choices.
Conclusions:
- Clinicians must recognize their influence and the framing of their opinions in patient decision-making.
- Standardized information sources are needed for clinicians to universally convey medication benefits and side effects.
- Accessible information for patients and relatives is crucial for informed decisions amidst uncertainty regarding dementia pharmacotherapy.
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