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Co-designed films to reduce care burden in India: The Moving Pictures pilot trial
Bianca Brijnath1,2, Rachita Rao3, Mathew Varghese4
1School of Humanities and Social Sciences, La Trobe University, Bundoora, Victoria, Australia.
Introduction:
Evidence for digital dementia care interventions is limited in low-and middle-income countries. We co-designed 10 short films on dementia care with Indian family carers and clinicians and tested their feasibility and effect on family carers' distress, mood, and quality of life.
Methods:
In a single-blind, online pilot randomized clinical trial, adult carers across India were randomized 1:1 to intervention or waitlist. Feasibility was defined as >70% consent and >80% retention at 3 and 6 months. Outcomes included distress, mood, and quality of life.
Results:
Of 58 carers expressing interest, 50 (86%) were randomized, and 43 (86%) and 45 (90%) completed 3- and 6-month follow-ups. Intervention participants viewed the films for an average of 1.3 h. No significant differences between intervention and control were seen at 6 months.
Discussion:
Co-designed, multilingual films are feasible and low cost but do not improve carers' distress, mood, or quality of life. These films may support carers in other ways.
Trial Registration:
Clinical Trials Registry India, CTRI/2021/01/030403 HIGHLIGHTS: Ten multilingual short films were co-designed for dementia carers in India. A pilot RCT was conducted for feasibility and films' effect on burden, mood, and quality of life. Fifty carers joined, 43 (86%) at 3 months and 44 (88%) at 6 months; the average viewing time was 1.3 h. No statistically significant group differences were observed, but a small benefit trend in the intervention group was noted.
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