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  1. Home
  3. A Scoping Review Of Literature Exploring The Healthcare Transition Of Individuals With Congenital Adrenal Hyperplasia.
  1. Home
  3. A Scoping Review Of Literature Exploring The Healthcare Transition Of Individuals With Congenital Adrenal Hyperplasia.

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A Scoping Review of Literature Exploring the Healthcare Transition of Individuals with Congenital Adrenal

Leslie Pitts1, Alexandra Armstrong1, Louise Fleming2

  • 1School of Nursing, University of Alabama at Birmingham, Birmingham, Alabama, USA.

Hormone Research in Paediatrics
|August 5, 2025

View abstract on PubMed

Summary
This summary is machine-generated.

Improving healthcare transition (HCT) for congenital adrenal hyperplasia (CAH) requires addressing communication gaps and developing structured programs. Further research is needed to optimize long-term outcomes for emerging adults with CAH.

Keywords:
Adolescent healthCongenital adrenal hyperplasiaEndocrinologyHealthcare transitionTransition readiness

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Area of Science:

  • Pediatric Endocrinology
  • Adolescent Medicine
  • Health Services Research

Background:

  • Guidelines recommend structured pediatric-to-adult healthcare transition (HCT) for congenital adrenal hyperplasia (CAH).
  • Significant gaps exist in understanding transition experiences and long-term outcomes for emerging adults with CAH.

Purpose of the Study:

  • To examine existing research on healthcare transition for emerging adults with CAH.
  • To identify barriers and knowledge gaps in the HCT process for this population.

Main Methods:

  • Systematic literature search of PubMed, Scopus, and Embase databases.
  • Inclusion of 18 studies exploring HCT in individuals with CAH.
  • Categorization of findings into HCT readiness/communication, programs/outcomes, and experiences/considerations.

Main Results:

  • Barriers include clinician shortages, distance to care, and socioeconomic factors.
  • Knowledge gaps identified in patient/parent perspectives, transition readiness measures, long-term outcomes, intervention research, and self-management skills.
  • Effective strategies involve communication, structured programs, and readiness measures.

Conclusions:

  • Optimizing HCT for CAH requires addressing communication, structured programs, and readiness measures.
  • Challenges like inconsistent metrics, logistical barriers, and care dropout necessitate further research, tailored interventions, and advocacy.