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Enhancing Radiation Oncology Training through Patient Advocate Integration
Christina A Simone-Soule1, Sara E Burke1, Dema Abul-Enin1
1Department of Radiation Oncology, Sidney Kimmel Comprehensive Cancer Center, Thomas Jefferson University, Philadelphia, PA 19107.
Including patient advocates in research training improves trainee communication, empathy, and understanding of research impact. This patient-centered approach enhances scientific training and its real-world relevance.
Area of Science:
- Medical research training
- Patient advocacy in science
Background:
- Patient advocates offer unique perspectives to research.
- Integrating patient advocates into training can enhance scientific understanding and empathy.
Purpose of the Study:
- To assess the impact of patient advocate feedback on research trainees.
- To evaluate improvements in trainees' communication, empathy, and understanding of research impact.
Main Methods:
- An IRB-approved survey was administered to trainees after interacting with patient advocates.
- Trainees self-assessed lay language use, empathy, and research impact understanding.
- Binomial proportion and Fisher's exact tests were used for significance.
Main Results:
- 80% of trainees completed the survey; most were under 30 and people of color.
- Trainees reported increased empathy (75%) and better understanding of research significance (71.4%) after advocate interaction.
- Most trainees desired advocates in future sessions but not for study design or analysis.
Conclusions:
- Patient advocates enhance trainees' ability to communicate research in lay language and understand its clinical impact.
- Incorporating patient advocates into radiation oncology training strengthens the connection between research and real-world application.
- Future training should consider patient advocate involvement to foster patient-centered research.
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