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Related Experiment Video

Updated: Sep 8, 2025

A Familiarization Protocol Facilitates the Participation of Children with ASD in Electrophysiological Research
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Social Participation When Aging With an Early-Onset Neurological Disability: Protocol for Descriptive Qualitative

Mia Lapointe1,2, Megan Veilleux1,2, Pascale Simard1,2

  • 1School of Rehabilitation Sciences, Faculty of Medicine, Laval University, Québec, QC, Canada.

JMIR Research Protocols
|August 6, 2025
PubMed
Summary

Individuals aging with traumatic brain injury (TBI), multiple sclerosis (MS), or spinal cord injury (SCI) experience diverse social participation. Understanding these experiences and barriers is key to developing supportive health programs.

Keywords:
MSSCITBIactive and healthy agingagingelderelderlygeriatricsgerontologyindividuals aging with disabilitiesmultiple sclerosisneuroneurological conditionsneurological disabilityneurological diseasesneurological illnessesneurologistsneuroscienceolder adultsolder peopleolder personsocial participationspinal cord injurytraumatic brain injury

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Area of Science:

  • Gerontology
  • Neurology
  • Rehabilitation Science

Background:

  • Growing aging populations with traumatic brain injury (TBI), multiple sclerosis (MS), and spinal cord injury (SCI) require adapted health and social services.
  • Social participation is crucial for active aging and health, yet evidence on aging populations with neurological disabilities is limited.
  • Understanding diverse social participation experiences is essential for developing inclusive health promotion approaches.

Purpose of the Study:

  • To explore social participation experiences in individuals aging with TBI, MS, or SCI.
  • To identify barriers and facilitators impacting their social participation.
  • To explore intervention strategies for enhancing social participation.

Main Methods:

  • Descriptive qualitative research within an action research framework.
  • Semi-structured interviews with 24 participants (8 each with TBI, MS, SCI) aged 50+.
  • Analysis using Framework methods, incorporating inductive themes and the Human Development-Disability Creation Process model.

Main Results:

  • Insights into the varied social participation experiences of aging individuals with neurological disabilities.
  • Understanding the influence of individual characteristics and environmental factors on social participation.
  • Identification of specific challenges and enabling factors for social engagement.

Conclusions:

  • Laying groundwork for co-developing health promotion programs for social participation in aging populations with neurological disabilities.
  • Identifying resources and strengths that foster social participation.
  • Highlighting systemic barriers that require intervention to improve social inclusion.