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An Evaluation of Online Resources for Paediatric Tube Feeding in Aotearoa New Zealand: A Document Analysis
Rae Padd1, Sarah Leadley1, Anna Miles1
1Department of Psychology, Faculty of Science, University of Auckland, Auckland, New Zealand.
Insights
Online patient education materials (OPEMs) for paediatric tube feeding often lack crucial information, particularly regarding emotional and social aspects. Improving website content can enhance health equity and support family-centered care.
Area of Science:
- Paediatric Nutrition
- Health Informatics
- Patient Education
Background:
- Paediatric tube feeding is essential for children unable to meet nutritional needs orally.
- Existing online patient education materials (OPEMs) for paediatric tube feeding are often insufficient for families.
- This study evaluates the quality and applicability of OPEMs for paediatric tube feeding in Aotearoa New Zealand.
Purpose of the Study:
- To explore the availability and quality of online patient education materials (OPEMs) on paediatric tube feeding.
- To assess the suitability of these materials for families in Aotearoa New Zealand.
Main Methods:
- A naturalistic Google search strategy was used to identify relevant webpages.
- Webpages were screened for educational content for caregivers, with a focus on Aotearoa New Zealand sites.
- Data collected included accessibility, readability, understandability, actionability, content analysis, and completeness.
Main Results:
- Fifty-nine webpages were analyzed; readability often exceeded recommended levels.
- Official sources showed high understandability and actionability, with the best content coverage.
- Key topics like emotional and social aspects of tube feeding were rarely addressed, and some advice lacked personalization.
Conclusions:
- Existing OPEMs have potential but significant gaps in content remain.
- Professionals can use findings to guide effective use of current OPEMs.
- Improving OPEMs can enhance health equity, centralize information, and empower family-centered care.
Background:
Paediatric tube feeding is a crucial intervention for children unable to meet nutritional needs orally, yet information available to families is often insufficient. This study explores the availability and quality of online patient education materials (OPEMs) on paediatric tube feeding and discusses their applicability to Aotearoa New Zealand.
Methods:
A naturalistic search strategy mimicking how parents would use Google search was employed using pre-defined search terms regarding support for paediatric tube feeding. Webpages were included if they provided educational content for caregivers. The first page of each search was screened, and webpages within relevant Aotearoa sites were also reviewed. Data on accessibility, readability, understandability, actionability, content analysis and completeness were collected and analysed.
Results:
Fifty-nine webpages were included and analysed. Readability consistently exceeded the maximum recommended eighth-grade level. Official sources targeting parents scored high in understandability and actionability. Official webpages also demonstrated the highest content coverage. The content analysis identified 34 individual topic codes. Rarely addressed topics included emotional aspects of the child and social management of tube feeding. Some content provided general advice that did not account for variations in children's medical conditions, developmental stages or family contexts.
Conclusion:
These findings are clinically relevant, guiding professionals on the effective use of existing OPEMs. Despite high understandability and actionability scores from some sources, significant gaps remain. OPEMs have the potential to improve health equity by improving website content, centralising information and enhancing access to education that empowers family-centred care and wellbeing.
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