Expressing Diversity of Health Datasets in the European Health Data Space

Diversity in health datasets refers to the inclusion of individuals with different characteristics, including sociodemographic and clinical, lifestyle and biological factors, like genetics. Diverse health data sets are crucial for ensuring health interventions benefit everyone and promote health equity. We explore how diversity of datasets can be measured and how this information can be made available in the EHDS through metadata. We argue that simple annotation does not suffice, and structured interaction with the data owner is needed to appropriately assess utility of multimodal datasets for research purposes.