Self-Reported Late Effects in Childhood Cancer Survivors in Kenya

Area of Science:

• Pediatric Oncology
• Global Health
• Cancer Survivorship

Background:

• The number of childhood cancer survivors in low and middle-income countries is increasing.
• There is a lack of data on late effects and follow-up care preferences for childhood cancer survivors in Kenya.

Purpose of the Study:

• To assess self-reported late effects in Kenyan childhood cancer survivors.
• To explore Kenyan childhood cancer survivors' preferences for survivorship care.

Main Methods:

• Semi-structured interviews were conducted with 26 childhood cancer survivors in Kenya (2021-2022).
• Patient and treatment characteristics were reviewed from medical records.
• Survivors had completed treatment at least one year prior, with a median of seven years since completion.

Main Results:

• 73% of survivors reported late effects, primarily pain and fatigue.
• 42% experienced limitations in daily activities (physical work, personal care, social engagement).
• Only 31% recalled being informed about late effects, and 58% had been lost to follow-up previously.

Conclusions:

• Kenyan childhood cancer survivors report late effects similar to global counterparts.
• Survivors and healthcare providers need education on the lifelong impact of cancer.
• Survivors prefer follow-up care at referral centers and recommended educational programs and survivor meetings.