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Identifying Professional Responsibilities and Designing the Optimal Curriculum for Haemophilia Nurses in Spain: A
Sara García-Barcenilla1, Montserrat Rambla Pérez2, Noelia Pérez3
1Congenital and Acquired Coagulopathies Unit, Hospital La Paz Institute for Health Research - IdiPAZ (La Paz University Hospital - Universidad Autónoma de Madrid), Madrid, Spain.
Summary
Consensus was reached on the competencies and responsibilities for haemophilia nurses in Spain. This framework aims to standardize education and professional development for nurses caring for patients with rare bleeding disorders.
Area of Science:
- Nursing Science
- Hematology
- Healthcare Management
Background:
- Lack of consensus on competencies for haemophilia nurses in Spain.
- The role of haemophilia nurses is often unrecognized in healthcare systems.
- Need for defined professional standards in thrombosis and haemostasis units.
Purpose of the Study:
- To identify and define the optimal curriculum for haemophilia nurses.
- To establish professional responsibilities for haemophilia nurses in Spain.
- To create a standardized framework for specialized nursing care.
Main Methods:
- Literature review to develop 205 items.
- Consensus building using a 10-point Likert scale.
- Virtual round table discussion with 13 participating nurses.
Main Results:
- Agreement reached on all proposed items.
- A three-level competency framework (basic, advanced, expert) was proposed.
- Nurses identified active roles in treatment, assessment, education, research, and advocacy.
Conclusions:
- A structured framework for education, scope, and recognition of congenital coagulopathies nurses in Spain.
- This framework supports formal training programs and accreditation.
- Aims to advance professional development in rare bleeding disorder nursing care.
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