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Respite time-use among dementia caregivers.

Donald A Godfrey1, Bob Wong2, Amber D Thompson3

  • 1College of Social and Behavioral Science, Psychology, University of Utah, Salt Lake City, UT, United States.

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|August 12, 2025
PubMed
Summary
This summary is machine-generated.

Goal-oriented respite planning using a mobile app improved caregiver satisfaction and well-being, regardless of respite hours. This suggests structured planning enhances the benefits of respite for family caregivers of individuals with Alzheimer's disease and related dementias.

Keywords:
caregiver stressfamily caregivinginterventiontechnologytime-use

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Area of Science:

  • Gerontology
  • Psychology
  • Health Informatics

Background:

  • Caregiving for individuals with Alzheimer's disease and related dementias (ADRD) imposes significant burdens on family members.
  • Caregivers face mental and physical health risks due to caregiving demands.
  • Existing respite care often fails to meet caregiver needs, leading to dissatisfaction and limited benefits.

Purpose of the Study:

  • To investigate if goal-oriented respite planning, supported by a mobile intervention, can enhance caregivers' subjective experience of respite.
  • To determine the impact of structured planning on caregiver satisfaction and perceived benefits from respite time.

Main Methods:

  • Eighty-five caregivers utilized a mobile intervention for planning and evaluating weekly respite.
  • Ecological Momentary Assessments were employed weekly to track respite hours, goal achievement, and subjective experiences.
  • The study monitored the number of respite hours, goal attainment, and overall caregiver satisfaction.

Main Results:

  • Achieving respite goals in a given week positively predicted improved respite outcomes the following week.
  • Caregivers reported increased happiness with respite activities, feeling like better caregivers, and having sufficient respite after meeting goals.
  • These improvements were observed independently of the total number of respite hours utilized.

Conclusions:

  • Weekly goal-setting and review activities are linked to better subjective evaluations of respite time for caregivers.
  • Interventions promoting goal setting and achievement can likely enhance caregivers' experiences and satisfaction with respite.
  • Mobile interventions facilitating structured respite planning offer a promising avenue for supporting family caregivers of individuals with ADRD.