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Perceptions and Needs of Stakeholders Regarding MyPal Project's Electronic Patient-Reported Outcome App:
Dimitrios Kyrou1, Panos Bonotis1, Christine Kakalou1
1Institute of Applied Biosciences, Centre for Research and Technology-Hellas, Thessaloniki, Greece.
JMIR Cancer
|August 13, 2025
Summary
Electronic patient-reported outcome (ePRO) tools like MyPal can enhance palliative cancer care through improved communication and monitoring. Addressing privacy and usability is key for successful integration into clinical workflows.
Area of Science:
- Oncology
- Palliative Care
- Digital Health
Background:
- Palliative care is essential for patients with life-threatening illnesses like cancer, addressing physical, psychosocial, and spiritual needs.
- Hematological malignancies are a significant global health concern, affecting both adults and children.
- Electronic patient-reported outcome (ePRO) interventions, like the MyPal project, are being developed to enhance patient monitoring and decision-making in palliative care.
Purpose of the Study:
- To explore patient, caregiver, and healthcare professional (HCP) perceptions of low-fidelity versions of the MyPal digital solution.
- To identify needs and opinions regarding the usability and integration of digital tools in palliative cancer care.
- To gather insights for optimizing eHealth interventions in palliative care settings.
Main Methods:
- A qualitative, cross-sectional study involving 12 prepilot focus groups across 4 European countries.
- 61 participants including adult cancer patients, pediatric patients with parents, and oncology/palliative care HCPs.
- Thematic analysis of transcribed focus group discussions guided by a semistructured guide, vignettes, and user personas.
Main Results:
- Participants recognized the potential for improved care through enhanced symptom monitoring, streamlined decision-making, and strengthened physician-patient communication.
- Concerns were raised regarding data security, privacy, communication protocols, and the need for clear response mechanisms from HCPs.
- Ease of use, particularly for vulnerable populations (elderly, children), and integration into clinical workflows, including alert systems for HCPs, were highlighted as crucial for applicability.
Conclusions:
- ePRO interventions like MyPal show promise in improving palliative care through enhanced communication and monitoring.
- Addressing patient privacy, ensuring user-friendly design for diverse populations, and seamless clinical workflow integration are critical for adoption.
- Study findings will guide the future development and optimization of eHealth solutions in palliative cancer care.
Keywords:
adult patients with cancereHealth systemsfocus group discussionshealth care professionalspalliative careMore Related Videos
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