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The Burn Survivor's Perspective on Disability: A Survey-Based Analysis
Eloise W Stanton1, Karel-Bart Celie1, Daniel Chacon1,2
1Division of Plastic and Reconstructive Surgery, Keck School of Medicine, Los Angeles, CA, United States.
Summary
Burn survivors experience significant long-term physical, psychological, and work challenges. Injury severity and visible scars increase disability risk, highlighting the need for comprehensive support.
Area of Science:
- Rehabilitation Medicine
- Psychology
- Public Health
Background:
- Burn injuries cause lasting physical, psychological, and social effects.
- Existing research on long-term outcomes primarily uses clinician perspectives, limiting survivor input.
- Patient-reported outcomes are crucial for understanding the full impact of burn injuries.
Purpose of the Study:
- To evaluate long-term, self-reported outcomes of burn survivors.
- To assess physical and psychological impacts, and work-related challenges from the patient's viewpoint.
- To identify factors influencing disability and work modifications post-burn.
Main Methods:
- A cross-sectional anonymous survey was administered to burn survivors (January-April 2023).
- Data collected included demographics, burn characteristics (%TBSA, scar visibility), and functional status.
- Statistical analyses included descriptive statistics, t-tests, chi-square tests, and multivariate regression.
Main Results:
- 128 survivors reported significant physical (avg. 5.0/10) and psychological (avg. 5.7/10) impacts.
- One-third of survivors were classified as disabled; visible burns, facial scars, higher %TBSA, and older age at injury were key risk factors.
- 91% reported work challenges, with 40% needing job modifications; gender and ethnicity did not significantly affect disability.
Conclusions:
- Burn survivors face substantial long-term challenges impacting quality of life and functional status.
- Disability is significantly associated with burn injury severity and visible characteristics.
- Findings underscore the necessity for comprehensive, individualized support services and interventions for burn survivors.
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