Jove
Visualize
Contact Us
JoVE
x logofacebook logolinkedin logoyoutube logo
ABOUT JoVE
OverviewLeadershipBlogJoVE Help Center
AUTHORS
Publishing ProcessEditorial BoardScope & PoliciesPeer ReviewFAQSubmit
LIBRARIANS
TestimonialsSubscriptionsAccessResourcesLibrary Advisory BoardFAQ
RESEARCH
JoVE JournalMethods CollectionsJoVE Encyclopedia of ExperimentsArchive
EDUCATION
JoVE CoreJoVE BusinessJoVE Science EducationJoVE Lab ManualFaculty Resource CenterFaculty Site
Terms & Conditions of Use
Privacy Policy
Policies

Related Concept Videos

Tertiary Healthcare System01:21

Tertiary Healthcare System

1.9K
Specialized care provided over an extended period is called tertiary care. Usually, a primary or secondary care physician will refer a patient to tertiary care. A patient's maximum physical and mental function is restored in tertiary care, which is caused due to the impact of a chronic illness or condition. Tertiary care aims to achieve the highest level of functioning possible while managing chronic illness. For example, a patient who falls and fractures their hip will need secondary care...
1.9K
Secondary Healthcare System01:11

Secondary Healthcare System

1.6K
Secondary healthcare is offered by a specialist, generally in hospitals or clinics for patients referred by primary healthcare providers. It occurs when a person has an illness or injury that requires specific medical care. Secondary care is often referred to as acute care. Secondary care can range from uncomplicated care to repair a minor laceration or treat a strep throat infection to more complicated emergent care, such as treating a head injury sustained in an automobile accident. Whatever...
1.6K
Treatment Resistant Cancers02:56

Treatment Resistant Cancers

3.4K
Cancer is the second leading cause of death in the United States. A cancer cell is genetically unstable and hence can mutate faster. They can also modify their microenvironment and escape immune surveillance. The difficulties in treating cancer are further compounded by the emergence of rapid resistance to anticancer drugs. The most common ways to attain resistance in cancer cells include alteration in drug transport and metabolism, modification of drug target, elevated DNA damage response, or...
3.4K
Chronic Pancreatitis II: Collaborative Care01:29

Chronic Pancreatitis II: Collaborative Care

127
The management of chronic pancreatitis is multifaceted, involving a comprehensive approach that includes thorough assessment, diagnostic testing, and a variety of management strategies.
Assessment:
127
Chronic Kidney Disease III: Interprofessional Care01:28

Chronic Kidney Disease III: Interprofessional Care

77
Chronic kidney disease (CKD) requires collaborative and comprehensive management. CKD progresses through stages and can lead to end-stage kidney disease (ESKD) if untreated. Interprofessional collaboration and patient education are crucial, enabling patients to manage their health and improve their quality of life.Diagnostic approach for chronic kidney diseaseThe diagnosis of CKD primarily focuses on the glomerular filtration rate (GFR), which assesses kidney function by measuring how well...
77
Primary Healthcare Services01:30

Primary Healthcare Services

1.5K
Primary care promotes wellness and prevents disease. This care includes health promotion, education, protection (such as immunizations), early disease screening, and environmental considerations. Settings providing this type of healthcare include physician offices, public health clinics, school nursing, and community health nursing.
In 1978, international leaders convened in Alma-Ata, Kazakhstan, for what would be a pivotal event in global health. The Alma-Ata Declaration was the first to call...
1.5K

You might also read

Related Articles

Articles linked to this work by shared authors, journal, and citation graph.

Sort by
Same author

Obesity, diabetes, and other metabolic disorders among the Bororo Indigenous population.

Archives of endocrinology and metabolism·2026
Same author

Oncogenetics training in Brazilian medical genetics residency programs: current landscape and challenges.

Journal of community genetics·2026
Same author

Main Recommendations for Developing Education and Awareness Strategies for Rare Diseases: Scoping Review.

JMIR medical education·2026
Same author

Effects of Aquatic Exercise on Type 2 Diabetes Management in Adulthood: A Systematic Review and Meta-Analysis, Including Evidence on the Use of Wearable Devices.

Healthcare (Basel, Switzerland)·2026
Same author

ReprodutHIVa: development and validation of an app for self-care for women living with HIV/AIDS.

Revista latino-americana de enfermagem·2026
Same author

Temporal trend and factors associated with cesarean section in Ribeirão Preto, Brazil, birth cohorts.

Ciencia & saude coletiva·2026

Related Experiment Video

Updated: Sep 8, 2025

Vascular Occlusion Training for Inclusion Body Myositis: A Novel Therapeutic Approach
09:01

Vascular Occlusion Training for Inclusion Body Myositis: A Novel Therapeutic Approach

Published on: June 5, 2010

14.3K

Promoting Comprehensive Care for People With Rare Diseases in a Tertiary Care Setting in Brazil: Protocol for a Mixed

Domingos Alves1, Filipe Andrade Bernardi2,3,4, Vinicius Costa Lima2

  • 1Department of Social Medicine, Ribeirão Preto Medical School, University of São Paulo, Ribeirão Preto, Brazil.

JMIR Research Protocols
|August 18, 2025
PubMed
Summary

This study introduces a digital health tool to improve care for people with rare diseases (RDs). The tool enhances coordination, resource allocation, and education for healthcare professionals, ultimately improving patient outcomes.

Keywords:
comprehensive caredigital healthimplementation sciencepublic health policyrare disease

More Related Videos

Comprehensive & Cost Effective Laboratory Monitoring of HIV/AIDS: an African Role Model
23:56

Comprehensive & Cost Effective Laboratory Monitoring of HIV/AIDS: an African Role Model

Published on: October 31, 2010

16.8K
Robotic Myotomy and Partial Fundoplication for Achalasia
11:19

Robotic Myotomy and Partial Fundoplication for Achalasia

Published on: August 11, 2023

1.6K

Related Experiment Videos

Last Updated: Sep 8, 2025

Vascular Occlusion Training for Inclusion Body Myositis: A Novel Therapeutic Approach
09:01

Vascular Occlusion Training for Inclusion Body Myositis: A Novel Therapeutic Approach

Published on: June 5, 2010

14.3K
Comprehensive & Cost Effective Laboratory Monitoring of HIV/AIDS: an African Role Model
23:56

Comprehensive & Cost Effective Laboratory Monitoring of HIV/AIDS: an African Role Model

Published on: October 31, 2010

16.8K
Robotic Myotomy and Partial Fundoplication for Achalasia
11:19

Robotic Myotomy and Partial Fundoplication for Achalasia

Published on: August 11, 2023

1.6K

Area of Science:

  • Digital Health
  • Public Health Policy
  • Rare Diseases Management

Background:

  • Rare diseases (RDs) present significant healthcare challenges due to complexity and low prevalence.
  • Comprehensive care for RDs necessitates strengthened services, programs, and care levels.
  • Digital health tools are crucial for epidemiological surveillance, patient follow-up, and healthcare professional (HCP) education.

Purpose of the Study:

  • Implement enhanced actions for the Brazilian National Policy for Comprehensive Care for People with Rare Diseases.
  • Develop a computational tool to optimize RD reference services and information dissemination.
  • Improve diagnosis, collaboration, and overall care for individuals with rare diseases.

Main Methods:

  • Mapping regulation processes and applying the 5W2H framework.
  • Integrating digital tools based on findability, accessibility, interoperability, and reusability (FAIR principles).
  • Conducting training initiatives for HCPs and developing a computational tool for patient tracking.

Main Results:

  • Ethics approval obtained; technical meetings held for data acquisition.
  • Key guidelines identified and management processes mapped; knowledge management maturity assessed.
  • A computational ontology is under development for semantic interoperability; education initiatives launched.

Conclusions:

  • Digital health solutions can transform RD care through improved coordination, resource allocation, and education.
  • Effective adoption enhances access to specialized care, reduces inefficiencies, and informs public health policy.
  • Integrating digital technologies is crucial for managing RDs and requires ongoing stakeholder collaboration.