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Tube-Fed vs Orally-Fed Children with Early Childhood Feeding Disorders
Noémi Scheuring1, Judit Gervai1,2, Ágnes Gulácsi1
1Early Childhood Eating and Sleeping Disorders Clinic, Heim Pál National Pediatric Institute, Budapest, Hungary.
Insights
Parents of tube-fed children with feeding disorders reported more stress and less satisfaction compared to parents of orally-fed children. Multidisciplinary teamwork and parental involvement are crucial for better management.
Area of Science:
- Pediatrics
- Child Psychology
- Clinical Nutrition
Background:
- Feeding disorders are common in young children, sometimes necessitating tube feeding.
- Oral intake insufficiency is a key indicator for intervention in pediatric feeding disorders.
- Understanding parental experiences is vital for holistic child care.
Purpose of the Study:
- To compare clinical management strategies for tube-fed versus orally-fed children with feeding disorders.
- To evaluate parental experiences, including stress and social support, in both groups.
- To identify factors influencing the coping mechanisms of parents managing children with feeding disorders.
Main Methods:
- Retrospective cohort study of 22 children under 3 years old with feeding disorders.
- Matched comparison of 11 tube-fed and 11 orally-fed children.
- Data collection via medical records, questionnaires, and validated self-report measures for parental well-being.
Main Results:
- Tube-fed children required more clinical visits, occupational therapy, and psychological consultations.
- Parents of tube-fed children reported lower satisfaction with child development and coping.
- Tube-fed group parents perceived less social support compared to the orally-fed group.
Conclusions:
- Clinical management of tube-fed children often prioritizes the child, overlooking parental support needs.
- Multidisciplinary teamwork is essential for efficient management of tube-fed children.
- Active parental involvement significantly enhances the management of feeding disorders in children.
Abstract:
BACKGROUND Children with feeding disorders may require tube feeding when oral intake is insufficient. This study compared the clinical management and parental experiences of tube-fed children versus orally-fed children with feeding disorders. MATERIAL AND METHODS A retrospective cohort study was conducted on 22 children under 3 years old diagnosed with feeding disorders, treated at the Early Childhood Eating and Sleeping Disorders Clinic, between July 2018 and December 2020. Eleven tube-fed children were matched with 11 orally-fed children based on age and sex. Data were collected from medical records, parental questionnaires, and clinical documentation. Parental mood, stress levels, and perceived social support were assessed via validated self-report measures. RESULTS Significantly different aspects of coping were found in the parental group of tube-fed children. The need for occupational therapy and psychological consultation only occurred in the tube-fed group. The tube-fed group had more visits at the clinic. These parents were less satisfied with their child's development and generally felt less successful in coping with the difficulties. They felt they had been less supported by their social environment than parents in the control group. CONCLUSIONS The management of tube-fed children primarily focuses on the child. However, these cases are more efficiently managed with multidisciplinary teamwork and with the active involvement of parents.
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