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'Living Well With a PICC at Home': Co-Design and Evaluation of a Peripherally Inserted Central Catheter (PICC)
Rebecca Sharp1, Qunyan Xu2, Robyn Pumpa3
1Clinical and Health Sciences/Rosemary Bryant AO Research Centre, University of South Australia, Adelaide, Australia.
Aim:
To co-design an information booklet to support adults living with a peripherally inserted central catheter (PICC) at home.
Design:
A sequential, mixed-method approach using Boyd's co-design framework.
Method:
A diverse project team led co-design of a PICC booklet based on preferences and PICC management strategies identified through content analysis of interviews with 15 Australian health consumers (January 2022-March 2023) using a qualitative descriptive approach. A draft booklet was developed, reviewed by the team and prototyped, which was evaluated by consumer participants and an external nurse panel, with readability assessed using Flesch Reading Ease and Flesch-Kincaid scores. The project team reviewed feedback, reached consensus on changes and collaborated with designers to produce the final booklet.
Results:
Consumer participant strategies were classified into four categories: enhancing coping, taking responsibility and understanding information, modifying life and accessing supports. Two pre-determined categories were included (participant recommendations for PICC education resource content and top tips for living with a PICC). The prototype was evaluated as highly relevant (3.9/4), comprehensive (3.8/4) with an appropriate writing style and visual appeal. Readability scores were 76.1/100 (Flesch Reading Ease) and 6.9 (Flesch-Kincaid grade level). The final booklet contained 13 sections.
Conclusion:
A co-design approach successfully created a novel PICC information booklet with positive evaluations.
Implications:
Provides understanding of consumer information preferences to inform PICC education and offers insight into consumer-developed strategies and knowledge for living with a PICC.
Impact:
A co-designed PICC information booklet based on consumer knowledge may augment nursing education for people living with a PICC to improve outcomes.
Reporting Method:
The qualitative component follows the EQUATOR network COREQ guideline. A co-design research reporting standard is not available.
Patient Or Public Contribution:
A consumer representative was a member of the project team and contributed to study design, interpretation of findings and development of the booklet and manuscript.
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