Coproducing a health advocate intervention for pediatric liver transplant recipients using a human-centered design
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View abstract on PubMed
Summary
This summary is machine-generated.A new navigator role was designed for pediatric liver transplant care, focusing on addressing social risks and improving access to resources for families. This role aims to bridge gaps in care and enhance patient outcomes by supporting caregivers and coordinating services.
Area Of Science
- Pediatric Healthcare Delivery
- Transplantation Medicine
- Health Services Research
Background
- Healthcare systems increasingly use navigators to reduce inequities.
- Navigation strategies in pediatric liver transplantation remain understudied.
- Social risks significantly impact families undergoing pediatric liver transplantation.
Purpose Of The Study
- To design a navigator role for pediatric liver transplantation using human-centered design.
- To identify caregiver and transplant team needs for navigator support.
- To address care gaps and social risks in pediatric liver transplant recipients.
Main Methods
- Human-centered design methodology.
- Virtual focus groups with 10 caregivers and 6 transplant practitioners.
- Qualitative analysis of focus group transcripts to identify essential job functions.
Main Results
- Caregivers reported low income, poverty, and financial strain.
- Caregivers desired help with community resources, healthcare team relationships, appointment preparation, school communication, and cultural differences.
- Transplant teams sought navigator assistance with socioeconomic needs, appointment coordination, and culturally/linguistically concordant care.
Conclusions
- A prototype navigator role for pediatric liver transplant care was designed.
- This navigator role addresses identified needs of both caregivers and transplant teams.
- Future research should evaluate the navigator role's impact on post-transplant outcomes.
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